From the President of the Support Group

Welcome to the SDS/MSA Support Group Web Site!  Although the site is always "under construction", you will find some very useful information here.  It is our hope that this will be the place where Patients, Caregivers, Family Members and Physicians can be comfortable while searching for information and support.  New sections will be added and existing sections will be modified on an ongoing basis.  Please return often to see what has been added or changed.  Also, feel free to email me at don.summers@shy-drager.org any time with your questions or comments.  I need everyone's help to continue the expansion of our "Circle of Hope"!  Thank you all for you encouragement, help and patience!

   Sincerely, Don Summers

Our Mission

The mission of the Shy-Drager Syndrome/Multiple System Atrophy Support Group (SDS/MSA) is to gather information from each group of people involved (Patients, Caregivers, Family Members, and Physicians) and disseminate that information to all.   The SDS/MSA Support Group is an information center and a "Helping Hand" for affected people.  Through various programs, including regional patient/caregiver support group meeting, support of local groups, the toll free help line and web site, the SDS/MSA's Support Group can reach many more people in need.  The support group also works closely with physicians who are newly involved with the disease and/or treating the patients as well as those who are involved in the essential research to discover a cause, modes of treatment, and hopefully a cure.  Information about the disease and tips on explaining it to the patient will be provide through several modes, including this web site, links to the American Autonomic Society , access to a referral base of experienced physicians, and educational meetings.  By sharing information, resources, and support the SDS/MSA Support Group will create a "Circle of Hope" for those affected by SDS/MSA.