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Local SDS/MSA Support Groups (USA)
| All State |
Don Summers |
donsums@eccwireless.com |
| P.O.Box 279 |
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| Coupland, TX 78615 |
Phone: 1-866-737-4999 |
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| All State |
Vera James |
fvjames@aol.com |
| 20277 Vejar Rd |
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| Walnut, CA |
phone: 1-866-737-5999 |
| National MSA Support Group Annual Conferences are organized |
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| around the USA. For more information when these conference |
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| are please check our site www.shy-drager.org |
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| AZ |
Jean Suico |
Suicoaz@aol.com |
| 2033 E. Watson Dr. |
Phoenix area |
| Tempe, AZ 85283 |
Phone: 480-839-3794 |
| No, meeting at this time phone support only |
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| CA |
Sandy Bierman |
sandybierman@yahoo.com |
| 4902 Folsum Way |
San Francisco/San Jose area |
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| Fremont, CA 94538 |
phone: 510-656-6897 |
| No , meeting at this time phone support only |
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| CA |
Ron Rogers |
ibron@pacbell.net |
| 443 Cherry Ave |
San Diego area |
| Imperial Beach, CA 91932 |
Phone: 619-429-8196 |
| No, meeting at this time |
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| CA |
Larry Schenker |
atypical.parkinsonian.disorder@gmail.com |
| UCSD Thornton Hospital |
San Diego
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| 9300 Campus Point Drive |
310-441-1488 |
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| La Jolla, CA 92037 |
Joyce Snell (San Diego Facilitator): |
joycesnell@san.rr.com |
| Coral Room (main level next to cafeteria) |
858 456-1230 |
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| 1st Monday of every month(1:30-3:30 p.m.) |
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Directions/Parking:
From the I-5: Exit on Genesee Avenue and go East. Turn right on Campus Point Drive. Thornton Hospital is located on the right.
From the I-805: Exit on La Jolla Village Drive/Miramar Road, and go West. Turn right on Genesee Avenue, then turn left on Campus Point Drive. Thornton Hospital is located on the right.
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| CA |
Ceri Williams |
medianet@earthlink.net |
| 15445 Ventura Blvd #46 |
Los Angeles Area |
| Sherman Oaks, CA 91403 |
Phone: 818-343-3259 |
| Yes, we hold meeting in Thousand Oaks every few months. |
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| Very inforaml with occasional speakers |
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| CA |
Suzanne Grimmesey-Kirk |
suzkirk@co.santa-barbara.ca.us |
| 4681 La Loma Way |
Santa Barbara area |
| Santa Barbara,CA 93105 |
Phone: 805 692-4010 |
| No, meeting at this time phone support only |
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| CA |
Candy Welsh |
cortez1us@yahoo.com |
| 1234 Cortez Ave. |
San Francisco area |
| Burlingam, CA 94010 |
Phone: 650-375-0229 |
| No, support meeting currently but looking for interest |
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| CA |
Vera James |
Fvjames@aol.com |
| 20277 Vejar Rd |
Los Angeles /Orange Co |
| Walnut, CA 91789 |
Phone: 1-866-737-5999 |
| Yes, meeting are held a few times during the year |
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| CA |
George Relles |
grelles@cox.net |
| 484 Valdez Ave |
Santa Barbara area |
| Goleta, CA 93117 |
Phone: 805-683-4829 |
| No meeting but available to talk by phone after 11 AM EST |
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| CA |
Lily Shih |
lilyshih1@comcast.net |
| San Jose area |
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| Fremont, CA 94539 |
Phone: 510-226-0453 |
| no meeting |
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| CA |
Robin Riddle |
rriddle@stanfordalumni.org |
| San Francisco area |
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| San Mateo, CA 94404 |
Phone 650-814-0848 |
| Yes, Atypical PD caregiver support group meeting held about every 6 wks |
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| CA |
Larry Schenker |
atypcial.parkisonian.disorder@gmail.com |
| UCI Gottschalk Medical Plaza |
Irvine /Orange co |
| One Medical Plaza Drve |
1st Floor Conference Room |
| Irvine |
Phone 310-441-1488 |
| First Wednesday of each month from 2-4 PM |
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| CA |
Kaiser Permanente West Los Angeles Medical Center atypical parkinsonian |
| 6041 Cadillac Avenue , Los Angeles , CA |
Clinic Building Basment level Classroom D |
| 3rd Saturday of each month 1 -3:30 PM |
Larry Schenker 310-441-1488 |
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| CO |
Daniel Schoenecke |
dschoenecke@econolite.com |
| 12 Paradise Rd |
Denver area |
| Golden, CO 80401 |
Phone: 303-526-5585 or 303-908-1812 |
| Yes, 2 nd Fridays 10:00 AM-Noon Johnson Adult Day Center |
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| 3444 S. Emerson St Englewood, CO |
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| Fl |
Gary Stelzleni |
flagary@cfl.rr.com |
| 560 Park Ave |
Melbourne area |
| Satellite Beach, FL 32937 |
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| FL |
Margaret Savage |
robert7061@mchsi.com |
| 9423 Pine Lilly Ct |
Pensacola area |
| Navarre, FL 32566 |
Phone: 850-936-4142 |
| No, meeting currently but looking for interest |
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| Guam |
James Taylor |
jtaylor@kuentos.guam.net |
| 180Cruz Heights |
Ipan-Talofofo area |
| Ipan-Talofofo, Guam 96915 |
Phone: 671-789-2307 or 671-735-5547 |
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| No, meeting phone support only |
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| IL |
A.E.P (Ed) Wall |
aepwall@ameritech.net |
| 17953 Indiana Court |
Chicago/Joliet area |
| Orland Park, IL 60467 |
Phone: 708-478-1236 |
| No, meeting > phone support |
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| IL |
Helen & Mark Alison |
mark-helen_alison@comcast.net |
| 14266 Castlebar Trail |
halison@comcast.net |
| Woodstock, IL 60098 |
Phone 815-338-8198 Rockford area |
| Not currently but looking for interest |
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| IL |
Johanna Garsenstein |
jgarsenstein@sbcglobal.net |
| 1722 Seward St |
Chicago area |
| Evanston, IL 60202 |
Phone: 847-864-2025 cell 773-350-7748 |
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| Not currently holding meeting but looking for interest |
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| IL |
Paul Boyd |
paulrboyd1@comcast.net |
| 2 N. Maple |
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| Mt. Prospect, IL 60056 |
Phone: 847-398-7456 |
| No, meeting held |
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| IL |
Pat Van Doren |
patvandoren@earthlink.net |
| Chicago area |
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| Naperville, IL 60563 |
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| No meeting held |
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| IN |
Gary Huddleston |
garylovesjoyce@yahoo.com |
| 284 Sunmeadow Way |
Indianapolis area |
| Indianapolis, IN 46208 |
Phone: 317-501-4899 |
| No meeting held |
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| IN |
Harriet Gossman |
HarriettG2@aol.com |
| 3313 Norma Dr |
Louisville, KY area |
| Jeffersonville, IN 47130 |
Phone: 812-288-7532 |
| yes, meeting but not regular |
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| IN |
Terry Howe |
tkhowe@surfbest.net |
| 4781 W. Runyon Lake Dr. |
Indianapolis area |
| Greenwood, IN |
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| KS |
Renee Haren |
H0rseL0ver80@aol.com |
| 2647 West 167 th Street |
Kansas City area |
| Stilwell, KS 66085 |
Phone: 913-681-8269 |
| Note: all zeros in email address |
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| No , meeting |
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| KY |
June Williamson |
jjunewmson@yahol.com |
| P.O.Box 295 |
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| Sidney , KY 41564 |
Phone: 606-353-0959 |
| No , meeting |
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| LA |
Mary Nesbitt |
tmnesbitt@yahoo.com |
| P.O. Box 148 |
Shreveport area |
| Keachi, LA 71046 |
Phone: 313-933-2646 |
| No, meeting but would be willing to. |
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| MA |
Carol Langer |
carollanger@comcast.net |
| 15 Stonegate Lane |
Boston area |
| Bedford, MA 01730 |
Phone: 781-271-9941 |
| Yes, coordinated by Melissa Diggin @BUMC in Boston |
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| MA |
Melissa Diggin |
melissa.diggin@bmc.org |
| BUMC |
Boston area |
| 715 Albany St C329 |
Phone: 617 638-7704 |
| Boston, MA 02118 |
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| Yes, Quarterly |
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| MD |
Shirley Snyder |
gramme835@verizon.net |
| 835 Sarah Drive |
Baltimore area |
| Eldersburg, MD 21784 |
Phone: 410-549-0860/410-259-1354 |
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| No, meeting held |
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| MD |
Maureen McDaniel |
MoMcdan@aol.com |
| 458 Nautical CT |
Baltimore area |
| Pasadena, MD 21122 |
Phone: 410-439-8518 |
| No, meeting held |
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| ME |
Jean Lockhart |
macklock@msn.com |
| 174 Bull Rock Road |
Portland area |
| West Bath , ME 04530 |
Phone: 207-443-6979 |
| No, meeting held |
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| ME |
Janet Edmunson |
Janet@janetedmunson.com |
| Portland area |
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| Portland, ME |
Phone: 207-799-4963 |
| Yes, Portland Atypical PSP/CBD/LBD/MSA |
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| MI |
Carol & Richard Ruth |
carol-richard920@sbcglobal.net |
| 35311 Hazelwood |
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| Westland, MI 48186 |
Phone: 734-377-6398 |
| No, meeting held |
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| MI |
Bernice Bowers |
bowers2863@comcast.net |
| 2863 Boulder Ridge Trail |
omabow@earthlink.net |
| Milford, MI 48380 |
Phone:248-444-3288 Detroit area |
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| No, meeting but will answer questions |
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| MN |
Brenda Richardson |
richlandacres@earthlink.net |
| LeRoy, MN 55951 |
Rochester area |
| Not currently but looking for interest |
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| MO |
Beverly Draper |
bev@netaxle.com |
| 7307 N. Woodland |
Kansas City area |
| Gladstone, MO 64118 |
Phone: 816-436-7526 |
| No, meeting |
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| MO |
Judy Darnell |
judydarnell@charter.net |
| 7329 MacLeod Lane |
St.Louis & St. Charles area |
| DardennePrairie, MO 63366 |
Phone: 636-281-9810 |
| No, meeting |
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| MS |
Elaine Coney |
econey@netdoor.com |
| P.O.Box 208 |
Hattiesburg area |
| Magnolia, MS 39652 |
Phone:601-783-3704 |
| No, meeting |
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| NC |
Amy R. DeBusk |
debuskbunch@aol.com |
| 432 Hastings Hill Road |
Winston-Salem area |
| Kernersville, NC 27284 |
Phone: 336-788-6110 |
| No meeting |
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| NC |
David Schoenberger |
Dschoenberger@nc.rr.com |
| Southern Pines area |
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| Southern Pines, NC 28387 |
Phone: 910-246-0750 |
| No, meeting held |
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| NC |
John Fisher |
jfisher@nc.rr.com |
| Apex area |
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| Apex, NC 27511 |
Phone: 919-387-7978 |
| No, meeting held |
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| ND |
Laura Alkofer |
alkofer@polarcomm.com |
| 104 Summit Ave |
Grafton area |
| Park River, ND |
Phone: 701-284-6869 |
| No, meeting but looking for anyone with MSA in area |
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| NE |
Kristen Henderson |
Tigeri1884@aol.com |
| 120 S. 36th ST. #5 |
Omaha area |
| Omaha , NE 68131 |
Phone: 402-932-5784 |
| No, meeting |
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| NJ |
Sam Convissor |
convisor@verizon.net |
| 526 Melrose PL |
Newark/NYC area |
| Orange, NJ 01643 |
Phone: 973-762-1140 |
| No, meeting |
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| NV |
Ray Johnson |
ray_johnson89123@yahoo.com |
| fourdiamonds@cox.net |
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| Henderson, NV 89012 |
Phone: 702-270-2292 Las Vegas area |
| No, meeting but do take calls on MSA |
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| NY |
Jenny Liu |
jennymliu@yahoo.com |
| 2201 Pine Ridge court |
jennyliuliu@gmail.com |
| Schenectady , NY 12309 |
Phone: 518-612-6112 Albany area |
| No, meeting |
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| NY |
Jill Thrasher |
thrasher@rochester.rr.com |
| 13 Woodruff Glen |
jill.thrasher@yahoo.com |
| Rochester , NY 14624 |
Phone: 585-429-7849 |
| Yes, meeting |
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| NY |
Linda Holzbaur |
Ijholzbaur@yahoo.com |
| 111 Monroe St. |
1 hr. from Binghamton |
| Ithaca, NY 14850 |
Phone: 607-330-4554 cell 607-280-8496 |
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| NY |
Maureen Conley |
moe@moeconley.com |
| 4581 Kennison Pkwy |
Buffalo area |
| Hamburg, NY 14075 |
Phone: 716-627-7344 |
| No, meeting but will if someone is interested. Call toll free |
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| voice mail 800-211-1202x4693 or call my home |
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| NY |
Tracy Low |
quinpep@yahoo.com |
| 116 Seville Drive |
Rochester area |
| Rochester, NY 14617 |
Phone: 585-785-6751 |
| No, meeting |
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| OH |
Judy Biedenharn |
jhbied@wowway.com |
| 3954 Larchmere Dr. |
Columbus area |
| Grove City, OH 43123 |
Phone: 614-875-5531 cell 614-668-9513 |
| Yes, meeting sporadically |
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| OH |
Nancy Mullen |
ds401@roadrunner.com |
| Cleveland area |
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| Moreland Hills, OH 44195 |
Phone: 440-247-8946 |
| No, meeting held |
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| OH |
Marsha Carpenter |
vecmar@alltel.net |
| 16940 Leggett Rd |
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| Montville, OH 44064 |
Phone: 440-988-3986 |
| No, meeting held |
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| OH |
Julie Tremp |
julia59@buckeye-express.com |
| 3145 Glencairn |
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| Toledo, OH 43614 |
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| Yes, Sporadically if enough interest |
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| OH |
Donna Maggard |
dmaggard@woh.rr.com |
| 408 Georgia |
Dayton area |
| Xenia, OH 45385 |
Phone: 937-708-3670 |
| No. meetings |
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| OH |
Pat Beekman |
mombeekman@aol.com |
| Cleveland area |
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| Berea, OH 44017 |
Phone: 440-234-0007 |
| Yes, 2nd Sundays 1PM-3PM PSP/MSA/CBGD |
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| Southwest General Health Center |
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| Middleburg HTS, OH basement level C15 |
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| OK |
Paul Nandico |
rehoboth@junct.com |
| P.O.Box 450062 |
Tulsa area |
| Grove, OK 74345 |
Phone: 918-786-4949 |
| Not currently but looking for interest |
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| OR |
Judy Mears |
mears54@msn.com |
| 1056 Twinwood CT.N.W. |
Portland area |
| Salem, OR 97304 |
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| No, meeting |
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| OR |
Vicki Blacken |
teacher@firstfriendscc.com |
| Marquis Care Center 319 NE Russet ST |
Portland area OR,WA, ID |
| Portland, OR |
phone 503-651-3633 |
| yes, 3rd Saturday of each month 10am - noon |
MSA group only |
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| PA |
Carole Barber |
barber.carole@juno.com |
| 193 Upper Heckman Rd. |
Pittsburgh area |
| N. Versailles, PA 15137 |
Phone: 412-678-8948 |
| No, but will answer questions |
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| TN |
Marilyn Morris |
marilynmorris@charter.net |
| 123 Hickory Hill Drive |
Nashville TN/Huntsville AL area |
| Tullahoma , TN 37388 |
phone: 931-455-3108 |
| No, meeting but will answer questions |
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| TN |
Amy Beckmann |
amyrenee@midsouth.rr.com |
| 2741 Higbee Ave |
Memphis area |
| Memphis, TN 38111 |
phone: 901-452-7443 |
| Yes, meeting 2nd Thursday . Germantown Public |
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| Library 6:30 PM till 8 PM |
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| TX |
Dee Cash |
DeezieC@msn.com |
| 100 Brooks Circle |
Phone: Dee 512-863-9717 or |
| Grorgetown, TX 78633 |
Kay Kitts 512-591-7505 |
| Yes, PSP/MSA/CBD meeting held on 1st Saturday Of |
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| each month 2PM to 4PM Georgetown Library |
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| classroom 2 nd floor |
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| TX |
Barbara Selleck |
barbaraselleck@sbcglobal.net |
| 905 Belvedere Dr |
Dallas area |
| Arlington, TX 78633 |
Phone: 817-469-6044 |
| No, meeting will answer questions |
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| TX |
Virginia "Ginger" Willman |
ginwill62@sbcglobal.net |
| 11908 Port Road |
Dallas area |
| Frisco, TX 75035 |
Phone: 972-377-9277 |
| No, meeting |
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| TX |
Barbara Bolling |
bjbolling@yahoo.com |
| Dallas area |
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| Azle,TX 76020 |
Phone: 817-221-3554 |
| No, meeting |
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| TX |
Karen Kennemer |
KMK1224@aol.com |
| Houston Area |
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| Kingwood, TX 77339 |
Phone: 281-358-2282 |
| Yes, meeting held 3rd Saturday 1PM . Memorial |
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| Hermann Southwest Hospital . Houston , TX |
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| VA |
Bill Werre |
rwwerre@comcast.net |
| 2250 Wildwood Cir |
Wahington DC area |
| Amissville, VA 20106 |
Phone: 540-937-6092 |
| Yes, meeting are held sporadically |
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| VT |
Kim Jackson |
kimandaction@yahoo.com |
| Bridgewater Corners, |
Rutland area |
| VT 05035 |
phone: 802-345-9730 |
| NO, Meeting at this time |
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| WA |
Susan Breidenbach |
breidenbach@msn.com |
| 2037 Lakemoor Dr. SW |
Olympia area |
| Olympia, WA 98512 |
phone: 360-352-5870 |
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| WA |
Tim & Vicki Turco |
lokislair@yahoo.com |
| Portland , OR area |
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| Toledo , WA 98591 |
Phone: 360-864-2772 |
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| WI |
Anna Shen |
alshen@wisc.edu |
| 210 Green Lake Pass |
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| Madison , WI 53705 |
Phone: 608-231-2945 |
| No, meeting but willing to help |
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| WI |
Elizabeth Morris |
charles235@centurytel.net |
| w. 9690 County Road J |
Rice Lake/EauClaire area |
| Ladysmith , WI 54848 |
phone: 715-532-9805 |
| No, meeting , but looking for interest |
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| WI |
Glen Schubert |
gds19781@yahoo.com |
| W223N2584Springwood LN |
Miwauke, Madison ,Chicago area |
| Waukesha , WI 53186 |
Phone: 262-993-1322 |
| No, meeting but looking for interest |
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| WV |
Sharon Reeves Cottrill |
SARC55@aol.com |
| RR 2 Box 164 |
Clarksburg, Morgantown area |
| Jane Lew ,WV 26378 |
Phone: 304-624-9700 |
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