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Sympathetic Nerves in MSA
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Blaser Research Foundation
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Local SDS/MSA Support Groups (USA)

All State Don Summers donsums@eccwireless.com
P.O.Box 279  
Coupland, TX 78615 Phone: 1-866-737-4999
     
All State Vera James fvjames@aol.com
20277 Vejar Rd  
Walnut, CA phone: 1-866-737-5999
National MSA Support Group Annual Conferences are organized  
around the USA. For more information when these conference  
are please check our site www.shy-drager.org  
     
AZ Jean Suico Suicoaz@aol.com
2033 E. Watson Dr. Phoenix area
Tempe, AZ 85283 Phone: 480-839-3794
No, meeting at this time phone support only  
     
CA Sandy Bierman sandybierman@yahoo.com
4902 Folsum Way San Francisco/San Jose area  
Fremont, CA 94538 phone: 510-656-6897
No , meeting at this time phone support only  
     
CA Ron Rogers ibron@pacbell.net
443 Cherry Ave San Diego area
Imperial Beach, CA 91932 Phone: 619-429-8196
No, meeting at this time  
     
 CA  Larry Schenker  atypical.parkinsonian.disorder@gmail.com
 UCSD Thornton Hospital  San Diego
 
 9300 Campus Point Drive  310-441-1488  
 La Jolla, CA 92037  Joyce Snell (San Diego Facilitator):  joycesnell@san.rr.com
 Coral Room (main level next to cafeteria)  858 456-1230  
 1st Monday of every month(1:30-3:30 p.m.)    

Directions/Parking:

From the I-5: Exit on Genesee Avenue and go East. Turn right on Campus Point Drive. Thornton Hospital is located on the right.

From the I-805: Exit on La Jolla Village Drive/Miramar Road, and go West. Turn right on Genesee Avenue, then turn left on Campus Point Drive. Thornton Hospital is located on the right.

     
CA Ceri Williams medianet@earthlink.net
15445 Ventura Blvd #46 Los Angeles Area
Sherman Oaks, CA 91403 Phone: 818-343-3259
Yes, we hold meeting in Thousand Oaks every few months.  
Very inforaml with occasional speakers  
     
CA Suzanne Grimmesey-Kirk suzkirk@co.santa-barbara.ca.us
4681 La Loma Way Santa Barbara area
Santa Barbara,CA 93105 Phone: 805 692-4010
No, meeting at this time phone support only  
     
CA Candy Welsh cortez1us@yahoo.com
1234 Cortez Ave. San Francisco area
Burlingam, CA 94010 Phone: 650-375-0229
No, support meeting currently but looking for interest  
     
CA Vera James Fvjames@aol.com
20277 Vejar Rd Los Angeles /Orange Co
Walnut, CA 91789 Phone: 1-866-737-5999
Yes, meeting are held a few times during the year  
     
CA George Relles grelles@cox.net
484 Valdez Ave Santa Barbara area
Goleta, CA 93117 Phone: 805-683-4829
No meeting but available to talk by phone after 11 AM EST  
     
CA Lily Shih lilyshih1@comcast.net
San Jose area  
Fremont, CA 94539 Phone: 510-226-0453
no meeting  
     
CA Robin Riddle rriddle@stanfordalumni.org
San Francisco area  
San Mateo, CA 94404 Phone 650-814-0848
Yes, Atypical PD caregiver support group meeting held about every 6 wks  
     
CA Larry Schenker atypcial.parkisonian.disorder@gmail.com
UCI Gottschalk Medical Plaza Irvine /Orange co
One Medical Plaza Drve 1st Floor Conference Room
Irvine Phone 310-441-1488
First Wednesday of each month from 2-4 PM  
   
CA Kaiser Permanente West Los Angeles Medical Center atypical parkinsonian
6041 Cadillac Avenue ,  Los Angeles , CA Clinic Building Basment level Classroom D
3rd Saturday of each month 1 -3:30 PM Larry Schenker  310-441-1488
     
CO Daniel Schoenecke dschoenecke@econolite.com
12 Paradise Rd Denver area
Golden, CO 80401 Phone: 303-526-5585 or 303-908-1812
Yes, 2 nd Fridays 10:00 AM-Noon  Johnson Adult Day Center    
3444 S. Emerson St   Englewood, CO  
     
Fl Gary Stelzleni flagary@cfl.rr.com
560 Park Ave Melbourne area
Satellite Beach, FL 32937  
     
FL Margaret Savage robert7061@mchsi.com
9423 Pine Lilly Ct Pensacola area
Navarre, FL 32566 Phone: 850-936-4142
No, meeting currently but looking for interest  
     
Guam James Taylor jtaylor@kuentos.guam.net
180Cruz Heights Ipan-Talofofo area
Ipan-Talofofo, Guam 96915 Phone: 671-789-2307 or 671-735-5547  
No, meeting phone support only  
     
IL A.E.P (Ed) Wall aepwall@ameritech.net
17953 Indiana Court Chicago/Joliet area
Orland Park, IL 60467 Phone: 708-478-1236
No, meeting > phone support  
     
IL Helen & Mark Alison mark-helen_alison@comcast.net
14266 Castlebar Trail halison@comcast.net
Woodstock, IL 60098 Phone 815-338-8198      Rockford area
Not currently but looking for interest  
     
IL Johanna Garsenstein jgarsenstein@sbcglobal.net
1722 Seward St Chicago area
Evanston, IL 60202 Phone: 847-864-2025 cell 773-350-7748  
Not currently holding meeting but looking for interest
     
IL Paul Boyd paulrboyd1@comcast.net
2 N. Maple  
Mt. Prospect, IL 60056 Phone: 847-398-7456
No, meeting held  
     
IL Pat Van Doren patvandoren@earthlink.net
Chicago area  
Naperville, IL 60563  
No meeting held  
     
IN Gary Huddleston garylovesjoyce@yahoo.com
284 Sunmeadow Way Indianapolis area
Indianapolis, IN 46208 Phone: 317-501-4899
No meeting held  
     
IN Harriet Gossman HarriettG2@aol.com
3313 Norma Dr Louisville, KY area
Jeffersonville, IN 47130 Phone: 812-288-7532
yes, meeting but not regular  
     
IN Terry Howe tkhowe@surfbest.net
4781 W. Runyon Lake Dr. Indianapolis area
Greenwood, IN  
     
KS Renee Haren H0rseL0ver80@aol.com
2647 West 167 th Street Kansas City area
Stilwell, KS 66085 Phone: 913-681-8269
Note: all zeros in email address  
No , meeting  
     
KY June Williamson jjunewmson@yahol.com
P.O.Box 295  
Sidney , KY 41564 Phone: 606-353-0959
No , meeting  
     
LA Mary Nesbitt tmnesbitt@yahoo.com
P.O. Box 148 Shreveport area
Keachi, LA 71046 Phone: 313-933-2646
No, meeting but would be willing to.  
     
MA Carol Langer carollanger@comcast.net
15 Stonegate Lane Boston area
Bedford, MA 01730 Phone: 781-271-9941
Yes, coordinated by Melissa Diggin @BUMC in Boston  
     
MA Melissa Diggin melissa.diggin@bmc.org
BUMC Boston area
715 Albany St  C329 Phone: 617 638-7704
Boston, MA 02118  
Yes, Quarterly  
     
MD Shirley Snyder gramme835@verizon.net
835 Sarah Drive Baltimore area
Eldersburg, MD 21784 Phone: 410-549-0860/410-259-1354  
No, meeting held  
     
MD Maureen McDaniel MoMcdan@aol.com
458 Nautical CT Baltimore area
Pasadena, MD 21122 Phone: 410-439-8518
No, meeting held  
     
ME Jean Lockhart macklock@msn.com
174 Bull Rock Road Portland area
West Bath , ME 04530 Phone: 207-443-6979
No, meeting held  
     
ME Janet Edmunson Janet@janetedmunson.com
Portland area  
Portland, ME Phone: 207-799-4963
Yes, Portland Atypical PSP/CBD/LBD/MSA  
     
MI Carol & Richard Ruth carol-richard920@sbcglobal.net
35311 Hazelwood  
Westland, MI 48186 Phone: 734-377-6398
No, meeting held  
     
MI Bernice Bowers bowers2863@comcast.net
2863 Boulder Ridge Trail omabow@earthlink.net
Milford, MI 48380 Phone:248-444-3288  Detroit area  
No, meeting but will answer questions  
     
MN Brenda Richardson richlandacres@earthlink.net
LeRoy, MN 55951 Rochester area
Not currently but looking for interest  
     
MO Beverly Draper bev@netaxle.com
7307 N. Woodland Kansas City area
Gladstone, MO 64118 Phone: 816-436-7526
No, meeting  
     
MO Judy Darnell judydarnell@charter.net
7329 MacLeod Lane St.Louis & St. Charles area
DardennePrairie, MO 63366 Phone: 636-281-9810
No, meeting  
     
MS Elaine Coney econey@netdoor.com
P.O.Box 208 Hattiesburg area
Magnolia, MS 39652 Phone:601-783-3704
No, meeting  
     
NC Amy R. DeBusk debuskbunch@aol.com
432 Hastings Hill Road Winston-Salem area
Kernersville, NC 27284 Phone: 336-788-6110
No meeting  
     
NC David Schoenberger Dschoenberger@nc.rr.com
Southern Pines area  
Southern Pines, NC 28387 Phone: 910-246-0750
No, meeting held  
     
NC John Fisher jfisher@nc.rr.com
Apex area  
Apex, NC 27511 Phone: 919-387-7978
No, meeting held  
     
ND Laura Alkofer alkofer@polarcomm.com
104 Summit Ave Grafton area
Park River, ND Phone: 701-284-6869
No, meeting but looking for anyone with MSA in area  
     
NE Kristen Henderson Tigeri1884@aol.com
120 S. 36th ST.  #5 Omaha area
Omaha , NE 68131 Phone: 402-932-5784
No, meeting  
     
NJ Sam Convissor convisor@verizon.net
526 Melrose PL Newark/NYC area
Orange, NJ 01643 Phone: 973-762-1140
No, meeting  
     
 
 
     
NV Ray Johnson ray_johnson89123@yahoo.com
fourdiamonds@cox.net  
Henderson, NV 89012 Phone: 702-270-2292  Las Vegas area
No, meeting but do take calls on MSA  
     
NY Jenny Liu jennymliu@yahoo.com
2201 Pine Ridge court jennyliuliu@gmail.com
Schenectady , NY 12309 Phone: 518-612-6112  Albany area
No, meeting  
     
NY Jill Thrasher thrasher@rochester.rr.com
13 Woodruff Glen jill.thrasher@yahoo.com
Rochester , NY 14624 Phone: 585-429-7849
Yes, meeting  
     
NY Linda Holzbaur Ijholzbaur@yahoo.com
111 Monroe St. 1 hr. from Binghamton
Ithaca, NY 14850 Phone: 607-330-4554 cell 607-280-8496
     
NY Maureen Conley moe@moeconley.com
4581 Kennison Pkwy Buffalo area
Hamburg, NY 14075 Phone: 716-627-7344
No, meeting but will if someone is interested. Call toll free  
voice mail 800-211-1202x4693 or call my home  
     
NY Tracy Low quinpep@yahoo.com
116 Seville Drive Rochester area
Rochester, NY 14617 Phone: 585-785-6751
No, meeting  
     
OH Judy Biedenharn jhbied@wowway.com
3954 Larchmere Dr. Columbus area
Grove City, OH 43123 Phone: 614-875-5531 cell 614-668-9513
Yes, meeting sporadically  
     
OH Nancy Mullen ds401@roadrunner.com
Cleveland area  
Moreland Hills, OH 44195 Phone: 440-247-8946
No, meeting held  
     
OH Marsha Carpenter vecmar@alltel.net
16940 Leggett Rd  
Montville, OH 44064 Phone: 440-988-3986
No, meeting held  
     
OH Julie Tremp julia59@buckeye-express.com
3145 Glencairn  
Toledo, OH 43614  
Yes, Sporadically if enough  interest  
     
OH Donna Maggard dmaggard@woh.rr.com
408 Georgia Dayton area
Xenia, OH 45385 Phone: 937-708-3670
No. meetings  
     
OH Pat Beekman mombeekman@aol.com
Cleveland area  
Berea, OH 44017 Phone: 440-234-0007
Yes, 2nd Sundays 1PM-3PM  PSP/MSA/CBGD  
Southwest General Health Center  
Middleburg HTS, OH    basement level C15  
     
OK Paul Nandico rehoboth@junct.com
P.O.Box 450062 Tulsa area
Grove, OK 74345 Phone: 918-786-4949
Not currently but looking for interest  
     
OR Judy Mears mears54@msn.com
1056 Twinwood CT.N.W. Portland area
Salem, OR 97304  
No, meeting  
     
OR Vicki Blacken teacher@firstfriendscc.com
Marquis Care Center 319 NE Russet ST  Portland area OR,WA, ID
Portland, OR phone 503-651-3633
yes, 3rd Saturday of each month 10am - noon MSA group only
     
PA Carole Barber barber.carole@juno.com
193 Upper Heckman Rd. Pittsburgh area
N. Versailles, PA 15137 Phone: 412-678-8948
No, but will answer questions  
     
TN Marilyn Morris marilynmorris@charter.net
123 Hickory Hill Drive Nashville TN/Huntsville AL area
Tullahoma , TN 37388 phone: 931-455-3108
No, meeting but will answer questions  
     
TN Amy Beckmann amyrenee@midsouth.rr.com
2741 Higbee Ave Memphis area
Memphis, TN 38111 phone: 901-452-7443
Yes, meeting 2nd Thursday . Germantown Public  
Library 6:30 PM till 8 PM  
     
TX Dee Cash DeezieC@msn.com
100 Brooks Circle Phone: Dee 512-863-9717 or
Grorgetown, TX 78633 Kay Kitts 512-591-7505 
Yes, PSP/MSA/CBD meeting held on 1st Saturday Of  
each month 2PM to 4PM  Georgetown Library  
classroom 2 nd floor  
     
TX Barbara Selleck barbaraselleck@sbcglobal.net
905 Belvedere Dr Dallas area
Arlington, TX 78633 Phone: 817-469-6044
No, meeting will answer questions  
     
TX Virginia "Ginger" Willman ginwill62@sbcglobal.net
11908 Port Road Dallas area
Frisco, TX 75035 Phone: 972-377-9277
No, meeting  
     
TX Barbara Bolling bjbolling@yahoo.com
Dallas area  
Azle,TX 76020 Phone: 817-221-3554
No, meeting  
     
TX Karen Kennemer KMK1224@aol.com
Houston Area  
Kingwood, TX 77339 Phone: 281-358-2282
Yes, meeting held 3rd Saturday 1PM . Memorial  
Hermann Southwest Hospital . Houston , TX  
     
VA Bill Werre rwwerre@comcast.net
2250 Wildwood Cir Wahington DC area
Amissville, VA 20106 Phone: 540-937-6092
Yes, meeting are held sporadically  
     
 
     
 
     
VT Kim Jackson kimandaction@yahoo.com
Bridgewater Corners, Rutland area
VT 05035 phone: 802-345-9730
NO, Meeting at this time  
     
WA Susan Breidenbach breidenbach@msn.com
2037 Lakemoor Dr. SW Olympia area
Olympia, WA 98512 phone: 360-352-5870
     
WA Tim & Vicki Turco lokislair@yahoo.com
Portland , OR area  
Toledo , WA 98591 Phone: 360-864-2772
     
WI Anna Shen alshen@wisc.edu
210 Green Lake Pass  
Madison , WI 53705 Phone: 608-231-2945
No, meeting but willing to help  
     
WI Elizabeth Morris charles235@centurytel.net
w. 9690 County Road J Rice Lake/EauClaire area
Ladysmith , WI 54848 phone: 715-532-9805
No,  meeting , but looking for interest  
     
WI Glen Schubert gds19781@yahoo.com
W223N2584Springwood LN Miwauke, Madison ,Chicago area
Waukesha , WI 53186 Phone: 262-993-1322
No, meeting but looking for interest  
     
WV Sharon Reeves Cottrill SARC55@aol.com
RR 2 Box 164 Clarksburg, Morgantown area
Jane Lew ,WV 26378 Phone: 304-624-9700
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