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How you can Help?

The SDS/MSA Support Group needs your help to increase the public awareness of SDS/MSA.  Some of the ways this can be accomplished are:

  • Write or call your U.S. Representatives and Senators, encouraging them to allocate more funding for Autonomic Research.
  • Encourage Physicians to learn as much as possible about the diagnosis and treatment of SDS/MSA.
  • Become a member of the group!

Call 1-866-SDS-4999 and become a member. Membership is open and free and your information can be taken over the phone.  Or send email to slysums@bga.com or write to:

SDS/MSA Support Group – Membership
2004 Howard Lane
Austin, TX. 78728

  • Volunteer your time!  We have several committees you can lead or be a part of:
  • Fund Raising – contact Don Crouse
  • Membership/Chapter Recruitment – contact Chris Pearson
  • Newsletter/Publications – contact Don Summers
  • Web Site – contact Sylvia Summers

We also need financial help to keep the support group going.  With the growth that we are experiencing it is no longer possible to expect Shire U.S. Inc. to carry the whole load.  If you are able to contribute financially contact the group president, Don Summers.

  You all have a part!  Remember our Mission:

“To Educate and Support”

We see the process as a circle with information and support constantly making the rounds from patient, to caregiver, to family member, to physician.

Please join us in our efforts to educate and support one another!

SDS/MSA Webinar Events 
Request Memorial Envelopes 
Participate in the Forum Discussion 
Patient/caregiver National Meeting 
Find a Local Support Group